Alignment around a cause is the most enduring and powerful level of alignment. As Steve McCurdy was telling me about the most recent Barth Syndrome Foundation (BSF) conference, the power of a compelling cause to make people put aside any petty jealousies and conflicts was clear. This permeates everything about BSF from its strategy and culture to organization and ecosystem and what they do.
The common thread from Steve and Kate McCurdy, two of the five co-founders, to Executive Director Emily Milligan to medical director Matthew Toth is a focus on helping others. No one gets involved with this organization at any level to fuel their own status. It’s all about mitigating and eliminating Barth-related suffering and loss of life.